Five Things That Will Change Everything
Five things that NIH has proven that it does well for other diseases.
A broad and deep natural history is a foundation to propel science. Every person with ALS deserves a chance to participate. We need to stop leaving valuable data on the table.
We need to reach more people (who are eager for trials, by the way) and accelerate more broad research. Today there are too many people stuck at the curb who can't get a seat on the clinical trials bus. Today's trial accessibliity leaves serious issues of diversity, equity, and inclusion.
All of the people with ALS who can't get into a clinical trial can still provide clues that could inform therapy developers. A parallel track with a solid infrastructure will complement the clinical trials network.
We ask the NIH to please be the leaders to find the gaps and the opportunities in our ALS research landscape and help us connect the dots.
Our team is thoughtful and motivated. There are many more in the wings. As you know, ALS steals some of our best and brightest. Put them to work. We can change everything together.